The MJD Foundation is a charity, established in 2008 to seek to improve the quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
Previously known as “Groote Eylandt Syndrome”, the effects of MJD have been known to the Aboriginal people of this region for at least four generations, and individuals with the disease have been the subject of sporadic western medicine investigations since the early 1980’s.
The MJD Foundation seeks to improve the quality of life of Indigenous Australian Machado Joseph Disease sufferers and their families in Arnhem Land and beyond.
To provide a better quality of life for Indigenous Australian sufferers of Machado Joseph Disease in Arnhem Land and beyond by:
- Providing improved services by working with and supplementing those services provided by the government
- Contributing to local and international research, and gaining an understanding of how this research can benefit Indigenous Australian sufferers of MJD in Arnhem Land
- The Implementation of practical solutions to help sufferers with their symptoms
- Providing greater levels of community infrastructure and transportation options to support the needs of sufferers and their families
- Facilitating comprehensive genetic education programs
- Advocating on behalf of sufferers and families to all levels of the community and government
- Ensuring flow on benefits to the wider international MJD community through research and advocacy.
East Arnhem Shire Council is a proud supporter of the MJD Foundation and positive outcomes it produces for the people of Arnhem Land, in particular the Groote Eylandt Archipelago.